This is officially my first blog attempt. Where did that word come from anyway...blog..? The first thing I want to say is I'm not doing this for people to feel sorry for me or my family. I have long ago come to terms with the "weirdness" within my family. I say weirdness because if I started out by using words like adenocarcenoma, glioblastoma, ductal carcinoma and myelodysplasia I'm pretty sure I'd lose you all right away. I still get lost around them.
In simple terms I have a genetic disorder. I had to of gotten it from one of my parents, which one..who knows. My ex-husband also has a genetic disorder. Together, instead of passing on quality traits like beautiful blue eyes or thick black curly hair, passed on a gene that causes cancer in our children. Sick thought isn't it..I mean of all the things I wanted to pass on, this one rears its ugly head.
My mother always said, if you can't stand the heat, stay out of the fire. I'm saying that now because I will at times, probably use some words that my not be suitable for children under 18. The first one will be BULLSHIT. We have grown to love that word in this family. Every time someone is diagnosed with some new type of cancer the word automatically pops up, we've all earned the right to use this word and God will forgive us all. :)
Today I was told I have myelodysplastic syndrome. It's better known as pre-leukemia. My dad passed away at 66 with it. Is it from him that I inherited this, doc says he has no way of knowing. Actually as I write this it's still sinking in. My prognosis isn't the best nor the worst. The doctors at the Cancer Center say 6-12 years, could be worse. The way I look at it is I'm a long way from cashing in the chips and with a roll model like my daughter and son I can't go wrong. They have no idea who they're dealing with.
I do wish Jake wouldn't have been with me today when I went to the doctor's office. I'm not sure I would of told him everything he heard today, maybe but I don't know. We're very close as I have been with all my kids, guess there isn't much I should keep from any of them.
I've been referred to yet another doctor who specializes in blood disorders. Honestly, I can't wait to sink my fangs into him. And yes, I'm laughing...and always will be...smiling.
Wow, Deb...just wow! I wish I didn't have to be reading this kind of blog. I don't like that you say 6 to 12 years...not fun. But as I have gotten to know you these past two years, I know just as well as everyone else who knows you that this is indeed Bullshit! Here's hoping to many more than that. Stay strong Deb...we all love you!
ReplyDeleteKim
By the way, Blog means 'web log' :) But you were just kidding, right? You knew that!
ReplyDeleteI agree with Kim...that prognosis has to be "bullshit" ! You and Liz are two of the most amazing people I have ever met! I'm so glad to get to call you guys my "friends". Love Ya Nebster!!! hah! I miss seeing your smiling face every single day! I'll be back to visit on my first day off!! :) Give BT hugs for me!!
ReplyDeleteLove, Ash
I think we all know by know that life doesn't have an expiration date. Maybe we should find Dr. Klopfenstein or that nurse in St. Louis who didn't think my prognosis looked very good. What would they think of me now? These professionals are only able to practice medicine because they could never be considered an expert at anything!
ReplyDeleteOK honest to God I have tries to leave a comment 4 times now so let me just say - wow great job! Thinking of you and your family - and BTW I will be "following" you - be afraid lol!
ReplyDeleteDeb, your courage has long been a source of amazement and admiration for me, so this too you will no doubt conquer in your own special way. Wish I could be there to give you a hug so get an extra one from your brother until I can deliver in person. Love, Cath
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